ALS struck Don Moir in 1995 and it has slowly debilitated him every year since. When Don was fitted with a ventilator in 1999, he lost all ability to speak, and soon after that went his ability to write with his hands. He has since communicated with a letter board with the alphebet divided into four quadrants.
This video is an incredibly touching story about Don’s wife Lorraine never giving up on him, and how she sought help from an organization called Not Impossible, who make open source medical device for people just like Don to find their voice again.
The man who developed this personal program for Don, Javed Gangjee, said
“A year ago I made Don a promise; that I will find an answer that will work for him specifically. When I look at Don, that could be me, that could be my uncle, that could be my dad, what right do I have to do nothing about it.”
Mr. Moir writes to his wife:
My Dear Lorraine, I can’t imagine life without you. You have made the last 25 years fly by and the last 20 with ALS more bearable. I am looking forward to the next 25 years, Love Don.